Originally we had a hike with the homeschool group scheduled for today, but Amber can't manage it so instead we are having a calm day at home finishing some school items and baking.
On the school front, Amber did complete her standardized testing this morning which means we are free to resume regular school next week. During her extended downtime Amber was able to finish the current literature book, The Tale of Troy. We've yet to have our last discussion on that book, but we are preparing for her final literatur book of the year, Famous Men of Rome.
Amber also watched a few more episodes of Drive Through Ancient History when she started to recover a little. While it's not my favorite resource, it does give her a different perspective on her current history topic with a little humor included.
Mostly Amber read lots of her fantasy books and we allowed her to watch Warehouse 13. I've been a fan since the pilot episode, but Amber was too young back then in 2009. Now that the final season has started we allowed her to watch the episodes from the beginning. It's been enjoyable to rewatch a series I love with Amber. There has been quite a bit of pausing to explain numerous historical references so that Amber understood the "artifacts" on the show.
I've been trying more new recipes this week to increase our catalog of safe treats, snacks and breakfast foods. With Easter this weekend, I needed a few special items for Amber to eat when everyone else has the standard Easter treats. I still LOVE Gluten Free on a Shoestring. Just when I need a new recipe Nicole is there with the perfect one. I do usually need to make a few substitutions, but there is no way I could develop these recipes.
As a baking tip, crackers apparently NEED sugar. Swapping dextrose for sugar results in "softers" not crackers. How do I know this? I attempted it with our tried and true sorghum-teff thins, otherwise known as Wheat Thin Copycat crackers. I didn't bother to look up the chemistry of this little blooper, but after two batches of softers I gave up and returned to sugar. Oddly enough the next batch was perfect.
We met again this week with Amber's dietician who commensurates with us over the reactions and agrees that there is still something we are missing causing random reactions in Amber. She laughed with me over the whole oats incident, knowing off the top of her head that they would have failed. We left the appointment with more recommendations for food trials and even the dietician's endorsement to participate in a drug trial. It's not a new drug and really is just a replacement enzyme. The only hitch is that it was originally developed for a different condition but might, and that's a big might, help FM kids tolerate more fructose. Thus the drug is in trial status for FM patients, but in use for the original condition. Still since Amber had lost weight this time we need all the help she can get. Amber is supposed to gain a pound a month, not lose 2 pounds. We see the GI doctor next week and will go forward from there.
On a positive personal note, I'm back to exercising 6 days a week (on average) and even have the resistance on my bike back up to the maximum level I ever achieved. I'm exhausted when finished, but am able to complete at least 60 minutes of cardio biking each session. I let my diet and exercise slide the past year while Amber has been sick and have now gained 8 pounds that I want to lose by my birthday next month. It's hard with Amber's carb and protein heavy diet to not join in the fun, but a healthy body that can keep up with the needs of our family is more important. I kinda forgot that along the way this past year.